The European Genomic Medicine Consortium (EGMEDC)

Accelerating the Clinical Translation of CRISPR and Genomic Medicines Across Europe

Who we are

The European Genomic Medicine Consortium (EGMEDC) is a pan-European, non-profit initiative convened by CRISPR Medicine News (CMN).

------

Our Mission

Our mission is to unite and empower clinical, academic, regulatory, and industry stakeholders to advance the development and delivery of CRISPR-based and related genetic therapies across Europe.

By aligning these efforts, we aim to establish a coordinated, ethical, and sustainable ecosystem for the clinical translation of genomic medicines - ensuring timely, safe, and equitable access for patients.

------

Strategic Aims

Our strategic priorities focus on solving Europe’s key translation bottlenecks.

1. Clinical Coordination and Implementation:
   • Aligning cross-border trials, data sharing, and long-term monitoring (supported by CMN Intelligence).
2. Infrastructure Mapping and Creation:
   • Connect Europe's fragmented screening, gene and cell therapy capabilities and implementing joint clinical-grade tools and protocols (first meeting of Europe´s genomic medicine infrastructures will take place during the CRISPRMED26 Satellite meetings).
3. Policy & Regulation:
   • Promote the harmonization of ethical frameworks, health technology assessment (HTA), and European Medicines Agency (EMA) regulatory pathways.
4. Access & Reimbursement:
   • Support scalable and fair access models for genomic medicines across European states.
5. Industry + Public Collaboration:
   • Bridging biotech, academic networks, national programs, and European initiatives to accelerate innovation and translation.
6. Annual Convening Power:
   • EGMEDC´s annual meeting will be held annually at CRISPRMED, Europe’s leading genomic medicine conference, held in Copenhagen

------

Membership

Membership opens in May 2026. To register your interest, please contact us.

------

"Learn - Innovate - Access"

Founding Partners and Supporters

EGMEDC launched on April 13, 2026 and is now operationalising. Full secretariat activities commence in May 2026.

The following organisations and companies have confirmed their support for the initiative and their intention to contribute to its emerging structure. Their roles reflect areas of alignment and strategic interest and will be further defined during the formalisation of the consortium. This list will be updated on a monthly basis.

• Academic / Clinical (confirmed): Amsterdam UMC, Netherlands / CCIT-DK, Denmark / UNIMORE, Italy / Institut Imagine, France / CIEMAT, Spain / SJD, Spain / Inserm, France / Genethon, France / Charité Berlin, Germany / UCL, UK
• Associated Partners / Ecosystem (confirmed): GenoTher, France
• Industry (confirmed): Bayer, Germany (seed supporter) / Chiesi, Italy (gold sponsor)
• GMP Manufacturer (confirmed): Aldevron, USA (seed supporter).
• Dissemination Platform: CRISPR Medicine News, CMN - CMN will host monthly interviews with EGMEDC members to share insights and updates from across the consortium.
• Data Intelligence & Infrastructure: A monthly report from CMN Intelligence will be made available to the public and EGMEDC members, supporting accessibility, data integration and transparency across participating organisations and companies.
• Legacy Partner: Copenhagen Legacy Lab, Denmark - supports the long-term preservation and dissemination of outputs emerging from EGMEDC, serving as an anchor point for sustainability and institutional memory.
• Innovation: The EGMEDC Secretariat will be based in the Innovation District Copenhagen, Denmark, a leading ecosystem for health and life science innovation.
• Governance / Compliance Partners: Grant Thornton & Lund Elmer Sandager.
• Non-profit Organisations: Gene4All, Spain

Membership opens in May 2026. To register your interest, please contact us.

Advisory Board

• Pascale Berthet, Cell'Ectiv Consulting, France
• Cecilia Jimenez Mallebrera, PhD, Research Director, Neuromuscular Unit, Institut de Recerca Sant Joan de Déu, Hospital Sant Joan de Déu Barcelona, Spain
• Dr. Sam Ringle, Regulatory Affairs Consultant, Germany
• Henri van de Vrugt, PhD, Advisor to the European Genomic Medicine Consortium, Bio Avenues, Utrecht, the Netherlands

The European Genomic Medicine Consortium (EGMEDC) is a voluntary, non-profit association registered in Denmark on 2026-02-10, CVR: 46256026 | Kalvebod Brygge 39, 5., 1560 Copenhagen V, Denmark | Founding Coordinator, Jens-Ole Bock, info@egmedc.eu | Articles of Association

Disclaimer

EGMEDC officially launched on April 13, 2026. Information on this website may be updated as the consortium continues to develop.

Copyright Notice

© 2026 European Genomic Medicine Consortium. All rights reserved.